Yesterday evening we took the kiddos on a walk and when we got home we were playing on the floor with Eli and all of a sudden he started having an episode but he was shaking and his limbs were jerking. Jed immediately took him from me and gave him a blessing, and instantaneously the convulsions stopped. It was so scary. I was bawling.
It has been so strange, after starting the meds he didn't have any problem for 4 days and then on Monday he had two and then they have been increasing more so yesterday and today, but when he started convulsing it put me over the top. I called his Ped this morning to see if they had the results from the EEG, they didn't so they said they would call me back.
The EEG came back normal so he doesn't have epilepsy. That is such great news! Dr. R thinks that it is connected to reflux. If you don't get enough oxygen your body can shake. He is trying to get us a more advanced appointment with a gastrointerologist as it usually is about a 2 month out wait. He recommended after eating keeping him upright for an hour so it has a chance to digest. I am so relived that it isn't seizures.
Yesterday was quite a day. Our house hasn't gotten the loving care it needs since we were so busy working on getting everything together for my mom's party so we spent most of the morning putting things back in order and then Ruby spent the afternoon playing with friends. I was down stairs when I heard someone come in the door, I called for Ruby and instead the response was "No, it's me." I hurried upstairs to see why Jed was home so early. Turns out that his companies owners have decided to turn the company over to a property management company. Jed's original boss passed away about a year ago and that has complicated things, but this is the last thing we expected.
I have felt numb at times but I feel like there is a new opportunity on the horizon and I know that something will work out. I am feeling very much at peace, and am so thankful for the wonderful support system we have. Life throws curve balls, but this is one I feel will work out to be a blessing.
Walt Disney World With Girlfriends
3 days ago